Why I Volunteer

Morning all!

Well, it’s fair to say we were pretty bad at keeping this guy updated. We will attempt to get some more stuff out in the next few weeks as the Project is rounding up – it can become a more reflexive blog instead. In the meantime we wanted to give a word to our great volunteers who were pivotal to the Project and aided in so many of the processes! Kosi came to us via a contact with Scope and was an amazing asset to the Team, so much so that she and fellow volunteer Shannon became our official Heritage Officers. We’ll pass you over to her:

In August 2008 bayc (Birmingham Association of Youth Clubs) had employed me as a part-time Trusts Fundraiser. This opportunity only came about because I had been volunteering in the same position for two years. My role involved researching potential charitable trusts to fund in-house projects. Each week I had to write appeal letters to trusts and wait for cheques to arrive. At the beginning I was 74% successful but when the recession hit bayc struggled to compete with other charities to receive funds. I began to feel stressed and anxious because I wasn’t meeting funding targets and I regretfully resigned from the position in 2012.

After two years of doing nothing I thought it was high time I did something productive! With the help of a Bid Services support worker I contacted Scope to find out if they needed a volunteer for anything. Unfortunately their work mostly focuses around supporting parents with children with CP (Cerebral Palsy) so it wasn’t ideal for me, but they referred me to their Regional Officer. Jackie came to visit me at home to discuss which areas of volunteering I would be interested in. I had informed her that I was keen to work with adults or children with CP.

A few days later Jackie emailed me to say that she had contacted Adam (Development Officer) from Cerebral Palsy Midlands in Harborne and he suggested that I could either volunteer supporting the service users with daily activities, or get involved in their heritage project. I was intrigued about the heritage project and wanted to find out more! Initially I thought the project would be based on the services which people with CP would have required over the decades to improve their lives.  However, when Lottie and I started to exchange emails, I learnt that the heritage project was aiming to hold an exhibition on the history and achievements made by the Centre, staff and, most importantly, the service users.

I had arranged to meet Lottie at the Centre to talk about the heritage project. The saga of getting to the Centre was a nightmare because the taxi didn’t show up on time and I struggled to communicate my difficulty with the taxi operator. With quick thinking, I thought to call Lottie and ask her to book me a taxi. The reason I am mentioning my transport issue is because many volunteers don’t realise how easy it for them to travel to their work placements and some still don’t bother showing up! As I am a wheelchair user I have to arrange transport in advance in order to get to the placements.

Once I arrived at the CPM Centre, Lottie explained to me what the Fulfilment Through Achievement Heritage Project entailed and which areas I could help in. I was introduced to Sam, an Ambassador of the Centre and I was bowled over by Sam’s knowledge of the Centre’s history!

The following Thursday I began my volunteering on the CPM Fulfilment Through Achievement heritage project!  My friend Shannon (another volunteer) and I started the process of cataloguing special needs equipment and old photographs of service users on to the item database. I was assigned the task to write out labels for objects which were loaned to us by the Museum of Medicine and Health in Manchester. The objects, including a small child’s club shoe, needed time spent researching what they were and where they’d come from, as no-one knew their original purposes. The research revealed some amazing facts about the objects and all the items from the Museum have been carefully displayed in glass cabinets in the exhibition room!

I have gained a huge amount from volunteering on this heritage project. The most interesting fact I learnt was that Paul Cadbury founded the charity because his daughter had Cerebral Palsy and he held a strong belief that other children and adults with the same disability would benefit from attending the centre, which was originally a school. Having the chance to look and touch very old pieces of hand and leg splints, as well as shoes, from the Museum was a huge privilege, and one usually reserved for conservators and curators so I felt honoured and excited to prepare them for the exhibition! With time my confidence grew and I enjoyed working with the Heritage Team, which was passionate in supporting each other in delivering a project to the community that is so closely connected to Cerebral Palsy Midlands.

The whole Heritage Team worked extremely hard to ensure the evening of the CPM Fulfilment Through Achievement exhibition launch went well.

So why should you consider volunteering? If you have spare time or you are unsure about what kind of job you are looking for, then it’s a great idea to do some voluntary work with charitable organisations like Cerebral Palsy Midlands. In the past thirteen years I have volunteered for several charities, including the West Midlands Refugee Council. It gives me self-satisfaction because I know I am a making difference for service users. Through volunteering you are learning about the charity, its aims, the staff and its users. It is certain that you will make friends with fellow volunteers and, in this setting; you are able to learn, develop and share your experiences of volunteering! The added benefit is that you are able to develop your practical and professional skills as well as confidence for a paid job.

I was born with Cerebral Palsy so I could relate and input my own life experience into the Heritage Project. When reflecting on how the older service users of the Centre have lived with CP I feel very fortunate. Even though I was brought up in a good Muslim household in Birmingham, my family didn’t understand what Cerebral Palsy meant because the doctors had failed to explain the condition in depth. Hence my family held a negative view of the outcome of my life. Despite this I had the chance to be educated and I managed to learn to read and write. The social services placed me in a special needs school and while I personally felt deprived of not having the chance to be a pupil in a mainstream school, due to my physical disability, I still managed to achieve some impressive physical feats, especially becoming a regional and national boccia player!

With my determination and willpower I also achieved my academic goal. After completing an Access to Higher Education course at Bournville College I was enrolled at Coventry University. The day I received my 2:1 BA (Hons) in Social Welfare & Community Studies, I knew I could achieve anything in life! Yes there are social, cultural and physical barriers put it front of me but I don’t let them stop me from achieving my goals!

When my mind wonders at the realisation of what the older service users of Cerebral Palsy Midlands had to endure in order to achieve the acceptance of a sometimes arrogant and ignorant society. I’m truly inspired by their determination and empowerment to fulfil their lives with long lasting friendships, sharing their life experiences and finding happiness in the simplest things. It has been a pleasure volunteering alongside these aspirational people!

Kosi x

Developing Our Space: Archive…

Hello all!

In a bid to be more open and (buzzword alert) ‘Behind-The-Scenes’ I thought I’d centre this blog post around the work we’ve been doing to actually create spaces for both our archive and exhibition.

While, perhaps, not the most interesting part of project development it is key to sort out the space your project will occupy before you get to do the really meaty part – filling it!

When we first moved into our office, set up our pot plant and computer on the desk, our thoughts turned to the room itself and how we could accommodate the storage we had into our new archive. Spinning around we saw the potential to fill the space behind us. It had long been used to collect boxes, files and folders so, rolling up our sleeves, we began the most oft performed task for all heritage positions – tidying up/sorting out. While we managed to redistribute, bin or store most of the items we came across an even bigger problem – pests!

Cupboard Space

With so much paper left lying about for many years unchecked we’d inhabited silverfish. These insects, which are not fish at all, thrive on paper materials as their source of nourishment, and are especially keen on books as they have a penchant for the gum that books are bound with. Quick work now became even more imperative as the archive materials had to be treated and an Integrated Pest Management system introduced. This was successful and the area could now become the new home to two recycled lockers from the Art Department.

As the archive begins to develop these shelves will be filled with acid-free boxes and sleeves housing the documents, photos and objects that make up Cerebral Palsy Midlands’ history. We have created new archival paperwork, condition and loaning reports to accompany our store and as even more tidying up goes on around the Centre we at least have a safe environment to hold these treasures!Cupboards - Triptic

So, while not the most glamorous side of things, at least it’s a small insight into the preparatory work that needs to be done before a project can develop further.

Watch this space for more news of some of the things we’ve uncovered and what’s now filling the INSIDE of those cupboards…

SHLD Conference 2013

Alreet guys!! We finally have something worthy to fill the coveted ‘second post’ slot on our blog – hoorah!

Yesterday we were in attendance at the Social History of Learning Disability Conference, hosted by the Open University in Milton Keynes. We spent all day listening to a vast array of inter-disciplinary speakers presenting talks in reaction to the conference title: ‘Avoiding more Winterbourne Views: What can we learn from history?’

It goes without saying that this day was highly informative and extremely interesting. The entire conference was dedicated to Mabel Cooper, who had been put into institutional care at only 4 weeks old. She spent all of her childhood and a good part of early adulthood in care, living for 20 years in St Lawrence’s Hospital in Caterham, Surrey. While this sheltered, and often unpleasant, early life could have damaged Mabel irrevocably she actually harnessed an inner strength that fed her determination to not just get out of St Lawrence’s but to ‘prove them wrong!’ Mabel’s learning disabilities never held her back and she spent her life speaking up for others with learning disabilities, as well as ensuring her story also got told. The conference was a fitting tribute to Mabel and all the work she’d done, and people she’d influenced. Type her name into Google and you can easily find out more, but for a more official channel, check out her story, in her own words: http://www.open.ac.uk/hsc/ldsite/mabel/

So, at a bleary-eyed 8:30am, Adam, Lottie, Anthony and Vic met at CPM Centre, piled into Adam’s Toyota and hit the M6 heading to Milton Keynes! We managed to keep Adam, our resident military history buff, from detouring to Bletchley Park and arrived at the Open University to the keynote speaker, the fantastic and formidable Margaret Flynn. Margaret delivered an arousing and impassioned talk on her findings at Winterbourne View (having authored the Serious Case Review into Winterbourne View. See the Report, via South Gloucestershire Council: http://bit.ly/10KuuXY)

There followed a series of incredible presentations centred around topics such as Citizen Advocacy, Belonging in a Community, living conditions, the history of institutions, independence for people with learning disabilities, the abuse individuals have suffered, and the importance of staff development. There were speakers from across the UK, as well as from Ireland, Australia and even 3 researchers from Harstad University College, Norway!

We broke for lunch (which was delicious and enjoyed in the sunshine) and then reconvened with a tribute to Mabel. The second talk of the afternoon immediately piqued our interest as it centred round a HLF-funded oral history project, culminating in a book, a new website and a short film. ‘No Going Back’ was devised by Tim Keilty and Kellie Woodley and saw them collate the history and stories of 12 residents at Prudhoe Hospital, Northumberland. (www.centreforwelfarereform.org/) Despite Prudhoe’s ghastly history of ill-treatment towards people with learning disabilities it only closed last year and Tim even had photos of the research team delving in skips to try and retrieve valuable archival material that helped inform the project! Although our archive here at CPMids does need some organising – we shouldn’t have to be diving into the rubbish bags during our research! (We hope!)

The final three presentations followed the ethos of learning from history, using it to inform and educate the future, about mistakes that shouldn’t be repeated and changes that need to be made. The Oxfordshire Family Support Network gave a moving, and extremely candid, talk about how family members had been affected by the treatment of their learning disabled relatives, the fights they’d taken on, the situations they and their families had been through, and their thoughts for how their experiences could inform the future. (http://www.oxfsn.org.uk/) The conference closed with Jan Walmsley throwing some open questions to the floor about how all we had learnt could be used looking forward.

While all the speakers managed to tackle this question admirably within their presentations, and the many Q & A sessions throughout the day, the final word should really go to Mabel, who when looking into her own history had these final thoughts to share:

“It shocked me, and I think it makes you different if you know that, it makes you harder than you would be normally. Some of it is upsetting but I think, for me, it’s been great now that I know most of it. I think you understand what’s going on if nothing else. It helps you in understanding yourself a lot more… It has made me anyway, it’s made me a lot stronger.”

Mabel Cooper, ‘I’d Like to Know Why’, 2013.

It was a fantastic day and well worth the four-hour round trip – thanks for driving Adam! We came back buzzing with ideas and comments, chattering throughout the journey back about all we’d heard and how we felt about it. I am sure it will have a direct impact on this project and how it progresses, not least because it has highlighted the vital importance of how history impacts the future, and more importantly how the stories of those involved need to heard and shared.

And with that, we’re off to buy cakes for our volunteers meeting this afternoon, because there’s no better way to get the ball rolling on this project then to start getting the research done and talking to our users about their experiences of Cerebral Palsy Midlands!

Watch this space for more…

Lottie. x

For a more complete round-up of the conference, and all the speakers involved, please see: http://www.open.ac.uk/hsc/ldsite/conferences_v2.html as they update their ‘Annual Conferences’ page, or leave a comment below for me to answer directly.

Welcome to the blog!

Hello All!

I’m your (very) newly instated Heritage Project Coordinator and I’ll be spending the next year developing and managing the Cerebral Palsy Midlands’ (CPMids), HLF-Funded, Heritage Project. We’re aiming to look at the wealth of information available in our archive here at our centre in Harborne, sort through it and hopefully use some of it in a final book and exhibition on the history of CPMids. We’ll also be hoping to work with a wealth of local partners and businesses, those who have always supported us in the past, and others who may still be unaware of our services here – despite being in Birmingham for 66 years!

So welcome to the blog, welcome to the project and watch this space for more info as the project develops, the ups and downs of organising such a large-scale project and the many people we meet along the way…

Lottie. x